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Re: Personal account by Pamela Weston on her death

Author: Chris P
Date: 2009-09-22 11:04

At least I haven't reached the level of playing Pamela has only to be thwarted by this condition.

The biggest problems for me is general muscular fatigue and muscular pain while walking (sometimes I can't manage a single stairs without taking it really slowly and other times I could run up a flight or two no problem before), and also the control in my hands so it takes longer for me to work on an instument as I take frequent breaks to let things relax (and this does impact upon playing as well). Sometimes I just won't work at all for several days or even a week until I feel up to it.

I just thought I was generally lazy as this has been going on for just over 20 years (and of post viral origin), but more recently knew something wasn't right as I've been havign trouble with my hands (they don't always do what I want them to do - feels like the same kind of weakness you get in your hands while gripping onto a rope or a bar and someone's making you laugh), so I went to my GP who referred me to a specialist, who in turn referred me to another specialist who confirmed things - so at least with a diagnosis there is the treatment.

But there is plenty of research and whatnot going on into this condition, so while there may not be a cure as such, there are already various treatments on offer and new treatments being discovered that do offer long term relief.

Chris.

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